Raising Funds to Fuel the Fight for Muscle Health


I never did any sports in my life . Especially any sport that would involve running!  Not even in school or college.

No running ...ever !

But at age 58 I lost a bet with friends and committed to run a Half marathon representing my son Alan for the MDA charity 

In the past 3 years I have ran 18 half marathon and 3 marathons for Team Momentum .  















Every year, Mana Gea-USA donates 2%      of it's net sales to Team Momentum.          Our donation will help save and improve the lives of individuals with muscular dystrophy and the families who love them. 


 As a member of MDA Team Momentum, I’m dedicating my miles, muscles and personal finish line to helping kids and adults living with muscular dystrophy, ALS and related muscle-debilitating diseases live longer and grow stronger.

Every step I take while racing marathons  will help MDA fund groundbreaking research to accelerate treatments and cures and provide care and support for families who are counting on us.

This is where you come in.. In adition to Mana Gea -USA 's efforts, please consider making a personal donation to

            

http://www2.mda.org/goto/LionelRunsChicago2019













​​Thank you in advance for your support!


​Thanks in part to MDA Team Momentum participants and donors, MDA anticipates more new treatments in development during the next five years than in the previous five decades combined. Let’s keep and build this momentum

Did you know that 250,000 people in the U.S. live with some form of neuromuscular disease?

That’s 250,000 people who have a harder time doing things that we tend to take for granted.


Walking, working on a computer, playing simple video games, taking lids off of markers, holding a glass, brushing teeth.

Breathing.

And doctors tell them that they’ll only get weaker with time.

 
But we refuse to settle for this reality.The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement. It’s special work powered by special people who give generously. Visit www.mda.org 

MDA had a successful 60-year partnership with comedian, actor, singer and filmmaker Jerry Lewis, the most popular and well known celebrity associated with the organization, whose work was known through his tenure as its national chairman and his annual telethon that he hosted from 1966 to 2010. 


What is Duchenne muscular dystrophy?

Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy.
DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Symptom onset is in early childhood, usually between ages 3 and 5. The disease primarily affects boys, but in rare cases it can affect girls.

What are the symptoms of DMD?

Muscle weakness can begin as early as age 3, first affecting the muscles of the hips, pelvic area, thighs and shoulders, and later the skeletal (voluntary) muscles in the arms, legs and trunk. The calves often are enlarged. By the early teens, the heart and respiratory muscles also are affected. For more about DMD symptoms, see Signs and Symptoms.


MDA-supported researchers are actively pursuing several exciting strategies in DMD, such as gene therapy, exon skipping, stop codon read-through and gene repair. Human clinical trials are under way for some of these strategies. .


Team Momentum gives individuals the opportunity to dedicate their participation in an endurance race – a marathon or half-marathon – to the fight against muscle disease.












Every Mile Counts “For Good”

Every step taken and every mile logged  by members of Team Momentum advances MDA's mission to assist families with health care services and day-to-day support, fund research breakthroughs worldwide, and fight back against dozens of life-threatening muscle diseases.

This is a very hopeful time in the race to find treatments and cures. With your help Team Momentum supports:

·         MDA clinics in 200 locations, including many of America’s top hospitals, meet challenging health care needs of families through expert team-based care.

·         MDA summer camps enable thousands of children with muscle disease to enjoy a week of barrier-free fun as they build friendships, confidence and independence.

·         MDA support groups and educational resources give families real-world tools for managing complicated diseases.

·         MDA research grants for clinical trials and translational research move promising discoveries along the drug development pipeline toward becoming approved therapies.

·         MDA advocacy efforts amplify the voices of people with neuromuscular disease, ensuring that legislators and policymakers are aware of issues of importance to our community